Dec 20, 2011

An adjustment

A little over a week ago I was diagnosed with Polycystic Ovary Syndrome, or PCOS. I won't get into lots of technical terms or explanations (I'm sure there will be more of that later on), but essentially it's a hormonal imbalance that can be treated, but can also lead to bigger problems (diabetes, heart disease, and infertility being a few of the bigger ones).

I'm still learning, so I don't have any hard and fast answers about causes, because the more I read/talk to people, the more I realize no two women with PCOS are the same.

What I know for sure: it's not life-threatening, it can be treated (but not really "cured"), and it can be a pain in the ass. Or the uterus. (Not really. But you get my point).

By the time I was diagnosed it wasn't a complete surprise, but when I originally went in to see my doctor and she told me this was her suspicion I was blown away. I didn't know a whole lot about PCOS (truth be told, I still don't), but I thought if you had really irregular cycles, that was the biggest indicator. Apparently there are a lot more indicators that aren't necessarily as well-known, but still signs that you might have PCOS. (Which is really interesting because apparently this is so common, one in every fifteen women have it).

That night Ben and I were discussing these other indicators, one of which is mood swings. We realized if the diagnosis was positive, it would make a lot of sense. We were quiet for a minute, both thinking about how this might impact us day-to-day as well as big picture (or at least that's what I was thinking about), when Ben turned to me and said, "yeah, this would make sense, because let's face it, you were kind of a bitch in high school."

I have never laughed so hard in my life.

It was the absolute last thing I expected him to say, but it was also so true. (This is why I married this man. He tells me the truth, but still makes me laugh).

So that's where I'm at right now. I'm talking about it, I'm processing, and I'm reading as much as I can. I have doctor's appointments set up, and I'm figuring out what the next step will be.

There are things I could be at risk for, but that's a post for another day. (Plus, until I know more, I'm trying not to jump to any conclusions). It's definitely been a bit of a roller coaster, but I'm letting myself ride it out, and seeing where it takes me.

I thought about not blogging about it, but that's not how I do things. I tend to word vomit, then sit back and process. (Remember my excessive earthquake cussing?) I'm all about full disclosure, and making people aware, and honestly, it would feel weird not to blog about something so big happening in my life.

There are going to be good days and bad while I'm learning and dealing and processing, but I've had amazing support from friends and family alike.

So for right now? It's an adjustment.

24 comments:

Annie said...

Wow, Becky. So sorry to hear of this. I am thinking of you and love you!

Lisa from Lisa's Yarns said...

Thinking of you, love! I have a couple of friends with PCOS. In a way, I think it must be a little bit comforting to have an explanation for some of the symptoms you have been noticing? That said, I don't want it to have any grave impacts on your health, of course. Thinking of you! Hopefully you slowly get some answers. I am glad you blogged about it, though. Given that 1 in 15 statistic, you likely have readers with PCOS!

Gracie (Complicated Day) said...

I'm sorry Becky! I hope treatment will be effective and side effect free for you. And I think Ben is hilarious and just right for you - I bet you needed laughter just then more than anything!

Sarah said...

Miss Becky, I am thinking of you, and I am always here to lend an ear. I appreciate your honesty, and I think you'll find a lot of support from us - your Internet Support Group for all things womanhood :)

BFraze said...

Is spilling wine on your laptop a symptom?

Nora said...

Sending big hugs from afar and hoping that the additional doctors have some good ideas and can help you with the bigger picture, road map and etc. in a way that works for you! Always here and xoxo

Amber (Girl with the red hair) said...

I'm glad you wrote this, I bet it'll help a lot and like Lisa said, with that statistic I'm sure you have some readers with it.

Ben is hilarious. What a guy! :-)

Stephany said...

Thinking of you! Sometimes, it's nice to have an answer and diagnosis for why things aren't quite right. That's one big thing I've learned this year. <3

Kathleen said...

I have PCOS! I always liked that I would go months and months in between periods...until I wanted to get pregnant. We had to see a reproductive endocrinologist and it took two years, but I finally had my baby. We want to have more kids though, and I worry that we won't be able to. But I'll deal with that when it's time!

Amber @ A Little Pink in the Cornfields said...

I'm sorry to hear about this, Becky! I hope that you find the answers you want to hear and that this doesn't affect your life too much. I'm curious to hear more about this since it so common.

Suburban Sweetheart said...

Sorry to hear of this scary & uncertain diagnosis, Becky, but if I know you, you'll figure out a way to make this a lesson learned & optimism found. Thinking of you. <3

Lucy The Valiant said...

That is no fun, sweetie, I'm sorry!! HUGS!

Stevie said...

Thank you for being and open and sharing about it. I'm sorry to hear about your diagnosis, but it sounds like you're approaching it in a healthy way.

I know several women who have PCOS, and you're right - no two women are the same. I think it's great that you're talking about it and educating yourself!

Ruth said...

Oh Becky, I'm sorry to hear this news, but so glad you decided to share!

My sister has PCOS, which makes me something like 50% more likely to also have it. (I think -- I'm not totally sure of that statistic, though.) In the past couple of years I've begun struggling with my menses -- I'm seeing a new gyno soon, but I think it's very possible I could have either PCOS or endometriosis. We'll see! So, I hear you :)

amberlee @ Life with a Dream said...

Good morning...You are not alone! This one is near to my heart... I was diagnosed with PCOS about 2 years ago, and it has been a struggle, but it can be managed. At first I didnt want to write about it either, but I did - you can read my experience here http://amberlee89.blogspot.com/2011/07/it-gets-little-personal.html

I was devastated at first, but with time and patience, everything will be ok! Feel free to email me if you have any questions.. =)

Mandy said...

Sending you huge, huge hugs friends. Love you lots.

erin - mutterings of eringirl said...

Oh Becky-
I am so sorry to hear this, but glad that you feel safe sharing it. My sister-in-law was just diagnosed with it earlier this month and so I started researching it for ways to support her. Just your simple willingness to share your story gives me hope for you and her, especially knowing there are so many people out there with stories to share. Stay positive and sending you many best wishes!

pinkflipflops said...

(()) check out thebump . com .. i've met a lot of friends there and a lot of them unfortunately deal with PCOS..

Heather Luther said...

I stumbled across your blog via pff, anyways I wanted to offer you big hugs. I was dx with pcos while trying to have our second child and the dx hit me like a ton of bricks. It is a major pita but totally manageable. If you havent already, check out soul-cysters.com. it is an amazon site chalked full of information and encouragement. Also, depending on what kind of pcos you have you may find the metformin and diet go a long long way to control your symptoms, it works wonders in some women and not in others but it is always worth the shot. Fwiw I was able to get pregnant with my daughter while making it. As hard amd as frustrating as it is, you are not alone.(hugs)

Mrs.Slick said...

Hey, I'm sorry about the diagnosis. I've been there. Like someone already mentioned http://www.soulcysters.com/ is a great resource. When I was first diagnosed it was my fallback place when I needed answers or support.

If you'd ever like to talk or just ask questions, you can find me over at http://mrs-slick.blogspot.com/. I also have some info about PCOS, my personal struggles and if it ever gets to that point, infertility treatments and protocols. Many women never need that and Metformin is the magic pill for them. ((big hugs)) and bravo to your willingness to share your story!

Lauren said...

The best advice I can give is to read this book
http://www.amazon.com/Patients-Guide-PCOS-Understanding---Reversing--Polycystic/dp/0805078282/ref=sr_1_1?ie=UTF8&qid=1324571123&sr=8-1
I was told about it after my diagnosis a year an a half ago and it explains everything. My doctor couldn't answer many of my questions but this book did. Many people find a treatment that works for them, it's just trial and error to find what's best for you. ((hugs)) thankfully there are many great PCOS resources out there and just know that you're not alone.

LGLDVM said...

I have PCOS too! I was really scared when I learned about the metabolic issues that can go along with it that you mentioned. What I have since learned is that you can really reduce your risk of complications if you regulate your hormones with birth control. Obiviously not going to work when trying to get pregnant, but the rest of the time.

My husband and I struggled to get pregnant because of my issues and I was really scared to go see a reproductive endocrinologist, but in the end I am so glad I did! I am now 27 weeks pregnant with twin girls and I am doing really well. It is possible to manage PCOS and even have children if you want to. Good luck to you! And check out the bump and soulcysters, both are great resources. :)

AshleyD said...

Hugs and prayers and so many good thoughts. Thinking of you!

erin said...

sending thoughts your way!!!

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